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Early Childhood Intervention (ECI) programs are designed to provide aid to children with physical or developmental challenges. Although eligibility begins at birth, the cutoff age is dependent on the program (generally between the ages of three and five.) All children with a diagnosis of lissencephaly or any other neuronal migration disorder are eligible for early childhood intervention. Once a child is no longer eligible for an ECI program due to age, they are transfer red to special education programs in the local public school. Most early intervention programs make the parents the central members of a team of professionals whose goal is to best meet the special needs of each child. The parents are involved in making decisions about the therapies and activities that will become central to the child's life. They also lead in the planning of goals for the child. While many professionals may develop a fondness for a child, only the parents, who bear the burden for rearing the child, have the greatest interest and responsibility for the child. The parents, therefore, must remain central to the entire early intervention process. For therapies to become beneficial, they must be repeated often. However, more and more children are being enrolled into early intervention programs as word of these program's existence and effectiveness become known. As a result, many programs do not have the staff available to meet the needs of all children. This further emphasizes the importance of the parents. They are able to perform most if not all of their child's therapies when a trained therapist is unavailable. The initial meetings between the parents and early childhood professionals are very important. It is during these meetings that the foundation for the care of the child are laid. Parents should not rush through these meetings. They should make sure that they understand the roles that they will have during the evaluation and therapy segments of the early intervention process. It is important to understand that your involvement in the process will vary over time, and may increase or decrease depending on periodic assessments of your child's development. The following guidelines should help maximize the benefit of the early childhood experience:
Before you take your child to an assessment remember:
Early Intervention ResourcesThe Family Village has compiled a great page of on-line resources.
On-Line Early Intervention ProgramsA listing of the early intervention programs that maintain web sites is listed below. If your state or providence is not listed below contact the Department of Health and Human Services in your area for information on receiving early childhood intervention for your child.CANADA Nova Scotia Antigonish Early Childhood Intervention Program - http://www.grassroots.ns.ca/comgrp/aeci.htm Ontario Hanen Centre - http://www.hanen.org Prince Albert P. A. Early Childhood Intervention Program - www.sasknet.com/~citynews/cl93jun.htm#ServiceClubsAssociations1 Saint John Early Intervention Saint John Inc. - http://www.sjfn.nb.ca/Community_Hall/e/Earl8822.html UNITED STATES Colorado The Resource Exchange - http://www.caccb.org/resource/early.html Nebraska Nebraska Department of Social Services - http://nncf.unl.edu/dss.eisc.html New Jersey ASAH - http://www.asah.org/index.html North Carolina Early Intervention in North Carolina - http://www.acs.appstate.edu/~mc14972/teach/early.html Ohio Ohio's Early Intervention Connection - http://alpha.wcoil.com/~deijha/index.html Texas Early Childhood Intervention - http://www.eci.state.tx.us/eci/ Washington Department of Social and Health Services- http://www.wa.gov/dshs/iteip.html West Virginia West Virginia Early Intervention - http://www.wvu.edu/~uacdd/eielig.htm
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Unauthorized redistribution prohibited. Please see our legal information page for details. Address all correspondence to: The Lissencephaly Network, Inc. 10408 Bitterroot Court; Fort Wayne, IN 46804 Telephone: (260) 432-4310, Fax: (260) 432-4310 Last Updated: 19 June 2002 Our thanks to GHG Corporation for hosting this site. |