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If you have just found out that your child has lissencephaly, you have a million questions and a hard time finding anyone with any answers. If so, this section of our site is for you. Here you will find general discussions on lissencephaly, the genetics of lissencephaly, not to mention some links to some other helpful web sites.
| General Disclaimer: While the information presented in this web-site is intended to inform it is not intended to replace the advice of your physicians and therapists. Since each child's circumstance is different, the Lissencephaly Network, Inc. encourages each parent to seek out and establish a close working relationship with the physicians and therapists who will be helping you to care for your child. While the parent is ultimately responsible for the health care decisions for their child, please consult qualified professionals to fully understand the ramifications of each decision you will be required to make. |
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Physician Information. Learn about lissencephaly in these papers written especially for physicians. |
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Seizures. A nightmare for any parent, seizures come at the worst possible times. Learn more about seizures, how to control them, and how to live with them. |
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Feeding. Often the feeding of your child can be a nightmare. This section provides information on various methods for you to feed your child with pros and cons of each method. |
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Therapy. Often progress comes in small steps and never without a lot of hard work. Learn about some useful therapies that you can do at home. |
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Choosing a Caregiver. Whether both parents work outside the home or not you may require the services of a specialized care-giver. Our experiences may help you choose the right care-giver the first time. |
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Ask the Doctor. Our doctors and therapists answer frequently asked questions. |
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Current Research With Lissencephaly. Learn about the Lissencephaly Research Project and decide if you would like your child to participate. |
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Upcoming Medical Conferences and Meetings. Travel off-site to check out upcoming neurological medical conferences and meetings. |
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Address all correspondence to:
The Lissencephaly Network, Inc.
10408 Bitterroot Court; Fort Wayne, IN 46804
Telephone: (260) 432-4310, Fax: (260) 432-4310
Last Updated: 19 June 2002
Our thanks to GHG Corporation for hosting this site.